This study describes the characteristics of persons with epilepsy and caregivers that are or aren’t familiar with sudden unexpected death in epilepsy prior to a survey administered online or in a clinical setting. 

Orrin Devinsky, MD, of the Comprehensive Epilepsy Center at NYU Langone Medical Center, and colleagues, conducted the study to help determine when care providers should facilitate a discussion about epilepsy-related mortality and sudden unexpected death in epilepsy (SUDEP) among patients and caregivers in order to educate those at high risk. 

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