Patients with Severe Epilepsy More Aware of SUDEP

Knowledge of SUDEP among patients and caregivers increased feelings of fear and anxiety, prompting them to discuss SUDEP with care providers.

This study describes the characteristics of persons with epilepsy and caregivers that are or aren’t familiar with sudden unexpected death in epilepsy prior to a survey administered online or in a clinical setting. 

Orrin Devinsky, MD, of the Comprehensive Epilepsy Center at NYU Langone Medical Center, and colleagues, conducted the study to help determine when care providers should facilitate a discussion about epilepsy-related mortality and sudden unexpected death in epilepsy (SUDEP) among patients and caregivers in order to educate those at high risk. 

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